It’s been some 5 years or so since I painted (digitally or in real life).
好好（想把你写成一首歌）－ 周深 Cover
我们好好 好到疯掉 像找回失散多年双胞
生命再长不过 烟火 落下了眼角
世界再大不过 你我 凝视的微笑
一直好好 是否太好 没有人知道
忘了要长大 忘了要变老 忘了时间有脚
最安静的时刻 回忆 总是最喧嚣
最喧嚣的狂欢 寂寞 包围着孤岛
它就窝在 沙发一角 却不肯睡着
不知道未来 不知道烦恼 不知那些日子 会是那么少
时间的电影 结局才知道 原来大人已没有童谣
最后的叮咛 最后的拥抱 我们红着眼笑
好好的生活 好好的变老 好好假装我 已经把你忘掉
What an amazing cover and vocals… of a male singer!
There’s always more floaters than time to anchor them to words. This, as with many posts, has been brewing (on cold drip?) for many months now. But I’ve marked it with a priority flag. Barely a month out and I’m already struggling to picture life in mainstream general practice or remember the stories that triggered this thought in the first place.
(On a side note, I suppose when you move clinics you wonder how the patients are doing. I haven’t much, except with the antenatals; many whom I’ve been seeing since their very first visit. I hope the little ones have hatched successfully. On my last day one patient gave me a hug and said, “aww, you mean, you’re not going to meet my baby?!” I recounted the story at home, then mum made the snide remark that I should just hatch my own, but that’s a scary thought.)
Is that medical
Many people demand medical certificates for work or welfare, without a medical condition, sometimes blatantly gaming the system for financial gain. But this occasion was memorable because it was the only time I’ve opened the door and informed a patient that we could not continue with the consultation.
The woman arrived more than half an hour late for a fifteen minute appointment. She was “fed up with working” and went on a one week holiday out of town. Now she was back and wanted a medical certificate to be paid sick leave for her days away. This was her first time seeing me, and she wasn’t interested to explore or manage any underlying issues. “The other doctor just writes a week off when I want some time off.” I gave her some options (me writing this certificate wasn’t one) and she started raising her voice. “What are you going to do for me? Nothing?! It’s a waste of time seeing you, you’re just adding to my problems. I’ll never come back to you again, YOU LOST ME AS A PATIENT.” Then she added, “I came late but had to wait. I shouldn’t have come on time anyway!”
To what extent (start of an essay question) is the employer-employee relationship, or a person’s unwillingness to contribute meaningfully to society, a medical issue?
The palliative care patient in his mid fifties with motor neurone disease. He always arrives in a fancy motorised wheelchair, skilfully navigating the width of the door by just a few nudges of his finger. Accompanied by the wife, who is ever impeccably dressed, positive and respectful of her husband’s independence (giving him plenty of time and space to talk for himself, and make decisions about his care). His mind was crystal clear, but his only functioning limb, the left arm, was becoming progressively weak. It shook too much for him to feed himself properly or hold anything. His breathing was increasingly weak as well. “Which state has voluntary euthanasia? I feel like a useless piece of meat.”
What hope can we offer in the face of protracted suffering and incurable disease?
The girl was about my sister’s age. She presented with numerous episodes of abdominal pain throughout the year. Nothing concrete on examination or investigations. So far she’s had visits to various doctors at my clinic and the hospital, including two inpatient admissions under surgery and paediatrics, with a variety of diagnoses including recurrent cystitis and pyelonephritis (negative cultures), appendicitis (had an appendicectomy), mittelschmerz, and possible dysmenorrhoea (started on the contraceptive pill). Later, it seemed like the episodes were related to school refusal and psychosocial issues. There was high tension between her and her mum, and between her parents who were separated. Out of nowhere she also mentioned being excited about her confirmation ceremony but complained that kids at her (Lutheran!) school were teasing her about being a “goody two shoes” Christian and going to church.
For a moment I wondered whether I’d have had more to offer if she was a girl in my youth group, rather than a patient at this clinic.
An elderly woman presented for a routine 75+ health check. She lived alone and independently – the closest family member was a sister halfway around the world. She was as well as could be. When we got to the part about her mood she says she didn’t feel down or depressed but wondered about life. “At this age I know more people dead than alive. I know it’s silly but I’m angry at them for leaving me.”
We certify deaths. Does that mean we are more able to grasp life and ageing, death and afterlife?
A woman came in for just a repeat script. But just a script is never as it seems. On tidying up the “issues” list on her file , she started talking about her pregnancy last year which ended in a termination. She was actually trying for a baby with IVF and went through the emotional rollercoaster, and financial cost, of several failed cycles. Soon after giving up, she fell pregnant spontaneously. Her husband was delighted but she was ambivalent because she had already given up by then. Then, during pregnancy she had severe hyperemesis gravidarum (nausea and vomiting) that wouldn’t go away or respond to treatment. She was waking up every one or two hours to vomit or dry retch, morning and night, and there was no relief from the nausea between the vomits. She was crying constantly. “I couldn’t handle it anymore,” she recalled, now with tears in her eyes, “people say you make the best decision for you at the time. But I don’t know. I feel guilty. I’m not sure I did the right thing.”
Can we acquit someone of their guilt?
Last one, and a strange one too – the patient turned the tables and started asking me all sorts of questions (which I largely refrained from answering). She presented under the guise of being up and down with her mood. After going through the standard questions, she didn’t have any symptoms of depression or anxiety. Then she jumped into her story, which was what she really wanted to talk about, given she was new to town and had no close friends to confide in.
She moved with her husband, who recently started a new job here. They had been married for over a decade and had several beautiful children. The couple had a fantastic relationship – “we’re soulmates”. He encouraged her to get out and about, and so she’s been hitting the gym. There she fell in love with her hot personal trainer, who was “the one” and everything she ever dreamed of. Alas, he felt the same way. She was even having “X-rated thoughts” about him (this information was definitely not from my history taking). “I feel terrible! What do you think I should do?” Not a rhetorical question. Then it got more personal – “what would you do if you were me? Are you married or in a relationship?”
Confessions. I’ve never been behind (or in front of) one, but I imagine this is the sort of thing that take place at a confessional. Does medicine offer moral and spiritual guidance?
Doctors are laypersons
“It is in reality the priest or the clergyman, rather than the doctor, who should be most concerned with the problem of spiritual suffering. But in most cases the sufferer consults the doctor in the first place, because he supposes himself to be physically ill, and because certain neurotic symptoms can be at least alleviated by drugs… We can hardly expect the doctor to have anything to say about the ultimate questions of the soul. It is from the clergyman, not from the doctor, that the sufferer should expect such help.” – Carl Jung
I chanced upon that chunk of Jung’s writing (he was sympathetic towards spirituality, but not a Christian) on a contemporary article about psychotherapy being a modern-day, secular form of priesthood. It’s not just about the expectations from society. Medicine has high expectation of itself too. We seek to help, and that’s wonderful. Caring and listening well is therapeutic in itself, and healthcare does offer pharmacological and non-pharmacological resources for a variety of psychosocial problems. Yet, in our eagerness to do good, to alleviate suffering, to provide holistic biopsychosocial-spiritual care, we can utter false assurance and smear balms (quacky ones) that do not heal.
As doctors, perhaps in our puffed up notions about our abilities, we forget that more often, we are the layperson rather than the expert. Consider, are you actually the best person to help with that “question of the soul”? I thought of it often, especially during the not-so-medical consults. It helped me to pause when I wanted to quickly cover my own inadequacy with empty words. I found it immensely helpful to remember that I didn’t, simply by being a doctor, have the upper hand in understanding social dysfunction, meaning of suffering, life and death, forgiveness and healing, love and relationships, amongst a myriad of other matters.
Where is your salvation
“Those things that you couldn’t do, and those diseases you couldn’t reverse, were left unspoken [in Ethiopia]. It was understood… In America, my initial impression was that death or the possibility of it always seemed to come as a surprise, as if we took it for granted that we were immortal, and that death was just an option.” – Abraham Verghese, Cutting for Stone (novel)
Not only is there a limitation to what areas medicine has claims to expertise, there is a limit of what is possible even within our own field. From time to time, people ask about it, being Christian and a doctor, as if these were mutually exclusive. Don’t you believe in science? Why do you need God?
I didn’t know what to say to the slowly deteriorating palliative patient, or any of the others really. Partly it’s my insufficient “life experiences”. However, my profession does not not have adequate answers either, nor can it offer salvation from suffering and death. Well, maybe for a time, but never all the time. Dr Cutillo in his book acknowledges the remarkable contributions of medicine. At the same time he points out the folly of putting excessive hope in medicine, in the place of God himself:
“No area of medicine can escape this sense of failure. Most obvious is oncology, when it involves incurable cancer. But rheumatologists cannot cure lupus, cardiologists still lose patients after a heart attack, neurologists must help people live with disability after a stroke, and even dermatologists see some patients die from melanoma. In every case there is a sense of failure, for both the patient and the profession… But science and technology are bound to fail if we ask them to fulfil promises of biblical proportions.” – Bob Cutillo, Pursuing Health in an Anxious Age
“Why do I make room in my mind for such filth and nonsense? Do I hope that if feeling disguises itself as thought I shall feel less? Aren’t all these notes the senseless writhings of a man who won’t accept the fact that there is nothing we can do with suffering except to suffer it?” – A Grief Observed, C.S. Lewis
I can see why he wrote, published under a pseudonym, yet was appalled at some of his own notes.
I’ll stop vacillating between “publish” and “draft”. I hate the impulse to cut and curate for no good purpose other than to serve my own vanity.
It’s not the parts about God. At least they face God, however imperfectly.
The fears or tears (here, so it now appears) are about me. Loss of what is mine. The concern for anyone else involved, little that there is, matters “chiefly for its effect on myself”.
“And all the time the joke is that the word “Mine” in its fully possessive sense cannot be uttered by a human being about anything. In the long run either Our Father or the Enemy will say “Mine” of each thing that exists, and specially of each man. They will find out in the end, never fear, to whom their time, their souls, and their bodies really belong – certainly not to them, whatever happens.” – Screwtape Letters (letters from a senior to a junior devil), C.S. Lewis
Nothing like a plane trip to shake a slither of emotion out of a cold heart. The Laputa-like views of the day, or deep blackness of the night, and the remote but real possibility of falling out of the sky altogether, is a humbling reminder of how small and limited we are. This, with no phone or Wi-Fi signals to distract, creates a few magical hours of altitude, solitude (across longitude and latitude…) and still does, no matter how often I fly.
Is that a few tears, perhaps? Barely enough to wet a tissue. It’s gone. What were they for? So unlike the days past where tears flowed freely, for intolerable stretches, and I knew exactly what they were about. I’m pleased at the transformation. I never want to feel like that again. I never want to feel again. I don’t want to think either. Oh I know, I’ve been told, it can’t be healthy in the long term. But I like the illusion of being in control.
For a brief moment I was stung, by a little sadness and many fears. Quickly buried under a blanket of resignation and indifference. How fragile, how precarious, is love, is life. Fear of disappointment and losing what I have. A greater fear, it sounds so irrational typed out, of losing what I’ve lost or can’t hold onto.
I will be dutiful but distant at home, in case death arrives – perhaps I won’t even have to grieve if I prepare early enough. I will be a friend, listening and caring well enough, but not trusting people with anything of myself – unreliable friends most have been, so who needs them? I will offer affection and commitment in relationship, but cautiously, with a store of apathy for a rainy day – love can hurt, a lot and for a long time. Surely, without exception, the end of all love is separation. Why risk being emotionally attached? It can’t be healthy, but I’m half-hearted in believing that, or wanting to do anything about it.
Inconsistent, isn’t it? On some level I believe a God who is incomprehensible, Trinitarian, self-existent, self-sufficient, eternal, infinite, immutable, omniscient, wise, omnipotent, transcendent, omnipresent, faithful, good, just, merciful, gracious, loving, holy, and sovereign. Yet I live as if such a God doesn’t care or doesn’t exist. Instead, it’s as if I’m trying to attain nirvana. If not the Buddhist kind of nirvana (I don’t know enough about Buddhism to be sure), at least my own form of freedom from desire, attachment, and suffering.
“For then, though I have forgotten the reason, there is spread over everything a vague sense of wrongness, of something amiss… This is one of the things I’m afraid of. The agonies, the mad midnight moments, must, in the course of nature, die away. But what will follow? Just this apathy, this dead flatness?”– A Grief Observed, C.S. Lewis